Most days we forget that Theo has a heart defect.  He is developing beautifully and his contagious smile cannot be missed.  

This month brings us one more reminder of his fight.  On September 27, Theo will be admitted to Boston Children’s Hospital for his final surgery, The Fontan.  They will perform a pre catheterization on Tuesday September 28 to determine their game plan. Surgery will be held that following day, Wednesday September 29.

During this surgery, the inferior vena cava, a large vein that carries deoxygenated blood from the lower body into the heart, is disconnected from the heart and attached to the pulmonary artery. After this operation, all of the deoxygenated blood from the body goes to the lungs without passing through the heart.

We are 2 years out since Theo’s Glenn surgery and for those of you who have raised children, A LOT changes in those two years.  Our journey continues as we begin to navigate surgery with our active, curious, toddler.  

This is certainly going to be difficult, but I have no doubt in my mind that we will be welcomed just as warmly as we were in past years.  As always, we are beyond grateful for Theo’s team and our amazing housing hosts.  

Stay tuned for updates along to way.  Thank you for the continued love and support.  Xo